Tuesday, April 23, 2013

Time Flies

It's amazing how fast time can fly. It seems like we just moved in. I keep telling people, "we just moved...wait...no, we got here in July, we've bee here for 10 months now." Nearly a year already!!! The girls have only 1 more month of school. I don't know if they are just DONE already or what, but with the exception of Emma just doing well at her school work b/c she always does...Abby and Bethany are just having SUCH issues! Bethany...it's like she has already mental checked out for the year. But she CAN'T because she still has her writing assessment to do. She might have finished the FCAT and her portfolio already, but it's like she's given up already. And Abby...UGH! I don't know if it is hormones or WHAT but something has GOT to GIVE with that child!! I sooooo at the end of my rope!!! SO FRUSTRATED!!! We have another neuro appt tomorrow because although her EEG and MRI here in Florida have both come back not showing any issues, she is still having seizures...several in a month. So when we called to make the appt, they told us over the phone to up her meds. THAT was a disaster!! It completely altered her personality. She literally could NOT function anywhere....school, therapy, home, church. So I cut her dosage back down to what she was on originally. But in doing that...she is back to having several seizures in a short amount of time. She's had 2 just this past week for sure...one of them waking her up for the 1st time. We NEED ANSWERS!!! I can't go on like this...ABBY can't go on like this. This is badly affecting her behavior and it is directly impacting our entire lives...school, church, home, EVERYWHERE. I'm back to feeling like I am drowning because I have teachers telling me that they don't know what else to do...well guess what????Neither do I!!!! I mean what am I as a mother supposed to do when I have both teachers AND my husband tell me in the SAME day that they don't know what else to do with her??? Well, you can't give up on her!! That's not an option!! I'm so frustrated I could cry! In brighter musings...the girls got Easter pictures done this year and they turned out REALLY good!